Submission Medium: written

Heartbeats

Dixon’s poem is written in 20 couplets of trochaic dimeter mimicking the rhythm of a heartbeat. In simple, often two-word phrases separated by periods, Dixon counters the stability of his rhythmic meter by evoking the chaotic feelings of coping with unstable health. He includes the ups and downs of swinging quickly from themes of exercise, confidence, and calm routines to sickness, bodily overwhelm, and hospitals. By weaving in the words “breathe in” and “breathe out” he highlights the conscious efforts one must take to keep breathing in the midst of conditions making it nearly impossible. This poem would go well in any health focused literature curriculum as it gives a uniquely structured and deeply evocative perspective to the challenges of living with a heart condition and managing the panic that comes along with it.

What Does It Mean to Die?

“What Does It Mean to Die?,” an article written by Rachel Aviv, chronicles the conflict between the Winkfield family and the medical staff who declared Jahi Winkfield deceased from brain-death. After a tonsil removal surgery, Jahi began coughing up blood and bleeding from her nose profusely. Her mother, Nalilah, the principal interview throughout the article, described how her daughter was not receiving proper care, which Nalilah attributes to racial discrimination. After continued neglect in the ICU, Jahi’s heart stopped, and two days later, she was declared brain-dead. She was put on a ventilator, but in California, there is a limited amount of time a hospital will allow a patient to remain in care. Due to the malpractice that had already occurred in her daughter’s care before “death,” and religious bases, Nalilah argued for her daughter’s right to remain on the ventilar and be cared for. The article offers contextual information regarding California law and insights from bioethics experts, as well as working physicians. After deciding to move to New Jersey due to their laws regarding religious-based continuation of care laws. Aviv details the controversy that emerged from this case, especially from the interest of the press and the pushback from medical professionals. Jahi continued to receive care from nurses and remained on a ventilator. Nalilah, her family, and some medical professionals believe that Jahi still is not “dead;” Jahi has physical responses, menstruates, and has a lowered heart rate at the sound of her mother’s voice. These facts prove, for some, as evidence for her right to care. However, some argue that this could be a shared delusion in the family. Regardless, the article presents many perspectives that ask the audience to understand the situation from different sides, while still staying grounded in Jahi’s story and Nalilah’s fight for care.

This story could be used in discussions of modern-day bioethics, especially in discussion of continued discrimination of BIPOC patients and families. Furthermore, it could lead to a discussion about the right to care and how we define “death” in different contexts.

Never Let Me Go

In Ishiguro’s dystopian novel, Never Let Me Go, health-care becomes fueled by state-sanctioned human cloning designed to farm organs. The clones live separate from regular society, unknowing of their status as clones until they must begin donations as young adults. The novel is told through the perspective of Kathy, a clone who escaped the donation process, as she recounts her relationships and experiences as a student and carer. For the first part of the novel, the reader does not know Kathy or her classmates are clones until it is revealed to them. If used in a class, it would be best not to reveal this twist.

The novel raises ethical questions about the human experience and the medical system. While fictional and dystopic, the themes of morality, exploitation, and autonomy in medical contexts make this piece a basis for discussions of principle issues in bioethics.

Never Let Me Go uses the first person perspective to put the reader into the shoes of a “clone,” not of someone receiving their organs. This use of perspective is worth noting and could lead to discussions of perspective and identity in healthcare and health narratives. Who do we align ourselves with? How do we relate to characters, or more broadly, to people experiencing circumstances different from our own?

Reclamation

This collection of short stories contains a variety of fictional narratives, some more directly related to healthcare than others, but all worth a read. In her foreword, Roxanne Gay characterizes the anthology as one in which “writers imagine what a culture of health might look like. They imagine the dire consequences for humanity if we don’t start building a true, widely accessible culture of health.”

One particular story that directly addresses health themes is a graphic narrative entitled “Reclamation” which tells the story of a Native American teenage boy struggling with absent parents, mental health issues, and self harm. One night he decides to run away from home and he encounters a horse, who he follows back to an old Native American man who is sitting in a field. The man asks him what is wrong and he shares his feelings of being lost and alone. The man shares wisdom of how he connected with his identity and heritage by spending time with horses, and starts teaching the boy how to ride a horse. The connection to the horses reveals a significant tie with the land that was taken from Native Americans, as well as a deep sense of community and freedom. We then see a time jump into the future, when the boy has become an elder advisor sharing wisdom just like the man who changed his whole life path, and quite possibly saved his life. It is an inspiring story touching on various important topics such as adolescent mental health, cultural belonging, the connections between cultural trauma and individual health, and how we can overcome obstacles in the most unexpected ways. This story would fit well into a cultural anthropology class, a mental health class, a class on Native American healthcare, or a graphic health narrative class. Because of its short length, it would work best as an in class reading to then discuss afterward. It could also work in conjunction with a more informational reading on Native American ideology or spirituality, or perhaps another story from a different cultural group on how to cope with mental health issues.

The Phone Call

“The Phone Call” by Melissa Fournier is a short narrative retelling the author’s experience in giving birth to an infant on the edge of viability and, in the face of low odds of survival and extreme neurological impairments, signed a DNR. She recounts her experience as it is compared with others’ experiences of earlier stage abortions, and how public perceptions of varying kinds of difficult parental choices can be laced with bias, even when well-meaning. This would be useful in a class about reproductive rights and abortion. It is not long enough for an entire assignment, but it could be a good example to challenge abortion stereotypes and assumptions include in a lesson on the many nuanced situations in which termination of life occurs.

Mary Jane: A play about caregiving for a young child with serious health conditions

Mary Jane is a single mother of a young child with cerebral palsy, seizure disorder, and lung disease. The play portrays her caregiving, both in ordinary times and during a health crisis that eventually takes his life. We see her build a support network, including professional caregivers and others with whom she gives and receives support. She is a fierce advocate for her son and her descriptions of him and her life with him make clear the value of disabled lives.

I plan to use this in class as an example of a caregiver narrative that shows the ways in which family members are impacted by illness and the significance of their support and advocacy. It is a powerful statement about the joy and the pain of caregiving (at one point in the play, Mary Jane states that one of the more useful things someone said to her early on was that there would be good days and bad days). It also portrays ways that our healthcare system and society often fail to support caregivers. There are scenes in which healthcare providers address Mary Jane only as “mom” and the only staff member in the hospital who addresses her by name is a chaplain.

He was not the first dead man I X-rayed

The author had this to say about the poem: “I have X-rayed thousands of people over thirty years, but this one still come backs to me. It’s the story I tell when people ask me for ‘hospital stories,’ so it’s no surprise that I eventually wrote the story in a poem. I can still so vividly see him and me alone in that cold room.”

” Content warning : Gun violence, some graphic descriptions of bodily harm

This is a short poem written from the perspective of the author as a X-ray technologist. It describes one particular experience he had caring for a man with a gunshot wound who dies during the treatment and the poem. Provides an opportunity to talk about death and the impact experiencing death may have on healthcare providers. The brevity and personal quality of this piece leaves room for students to interpret and discuss their own thoughts and reactions.

There is a complex story in a brief poem, with lots to unpack, accessible to all audiences.

In need of a prayer

Physician’s story of visit to a suspected-COVID patient from early days of pandemic. Details the stress of not knowing how to protect herself, patients’ isolation from his family, lack of treatment options, frantic pace of ER when infections and frequent deaths taxed medical professionals’ emotional and physical stamina. Relates patients’ conditions to her own father. Vivid starting point to discuss burnout (contrast with simple exhaustion and overwork), remind all audiences of what early months of uncontrollable COVID were like as memories fade. Ends by evoking a Celine Dion/Andrea Bocelli song about prayer that could contribute to discussion of music in healing.

(Not so) golden years

Daughter describes the stress of caring for her aging parent from geographically distant place. Details many issues that created burnout in her caregiver role, including feeling isolated and embarrassed about her struggle until she found out all of the problems she faced were very common for caregivers in her position. Useful to discuss how difficult it is to care for elderly parents, especially from a distance, and caregiver burnout.

Bullet journaling to save a life

An African American woman at a predominantly white institution is diagnosed with bipolar disorder. Along with therapy, she works through her struggles with various mindfulness strategies, including a method described by Ryder Carroll as “bullet journaling.” Her story encourages consideration of writing as a mental health practice, describes the author’s adaptations of the bullet journal technique, and contains links to a TED talk and a book that go into more detail about this particular approach to intentionality. Useful starting point for talking about therapeutic (and general mental health maintenance) uses of writing. Glances of POC experiences in PWI’s, though not much detail.