Type of Submission: Health Story

Medicina narrativa

Overview of narrative medicine: characteristics of a narrative, benefits for health professionals, basis in biopsychosocial model of medical care. Useful introduction to a course in health narratives taught in Spanish; upper intermediate reading level, 4 pps

Bipolarations

David Martinez tells of his experience with bipolar disorder through childhood flashbacks that detail his family's desire to deny that anything was "wrong," their wariness of therapy, his placement in a classroom for "troubled" youth, his dropping out and his drug use. He describes the relief it was to receive, at age 32, a diagnosis and prescription medication for his condition and his subsequent work to integrate "the boy" he was and the college professor he is now. His story provides insight into how he experiences the "highs" and "lows" of his bipolar condition. He includes self-portraiture to tell his story. A recurring theme is uncertainty about what is "real"--his euphoric and dysphoric experiences, his diagnosis--and the distinction between internal experience and how one appears to others. The essay could prompt discussion about the role of family in encouraging or discouraging treatment for mental health issues, the reasons why people may not take medications, the ways people mask or express mental health experiences. This essay appeared in Please See Me, an online literary journal that features health-related stories by members of vulnerable populations, and those who care for them.

Please See Me

Online literary journal that features health-related stories in the form of fiction, creative nonfiction, poetry, and art, as well as the occasional film and interview. Issues include multiple works around a specific theme (e.g., Pain, Hope, Mental Health, Women's Health). Work features voices of patients, providers and "healthcare consumers" from their own experiences and perspectives. Written submissions are 4000 word maximum. Examples of featured works include: A mixed media art piece on pain, grief, and hopelessness from an artist dealing with loss and addiction (lil peep in Issue #2: Pain), a poem about medical debt ("Johns Hopkins Sues Patients, Many Low-Income, for Medical Debt" in Issue #9: Open Call), and a mother’s experience raising a son with intellectual disabilities and grappling with an Alzheimer’s diagnosis (Forgetting Aiden in Issue #1: Conversation).

René (Video Oficial)

This 7-minute music video tells Rene's (Residente) story of growing up "lower middle class" but secure in Puerto Rico. Describes happiness, sadness and the fragility of being a famous rapper and how he uses alcohol to deal with powerful feelings: loneliness, fear, grief - but music and baseball are more stable healing forces. The video has accurate subtitles in both Spanish and English and moves quite slowly (and can be slowed even further). Many scenes and details of Puerto Rican culture, excellent illustration of dialect features. Could be used to discuss alcoholism, addiction, grief in an upper intermediate or higher Spanish course.

Wake Me up When September Ends

The hit single "Wake Me up When September Ends" was written by Billie Joe Armstrong about his father who died from esophageal cancer when Armstrong was 10 years old. This popular song illustrates a health storyline that is likely overlooked by many casual listeners. Listening to the song, paying close attention to the words, could open discussion of grief and loss.

BDD, Fighting the Voice of Imposter Syndrome, and an Act of Power

This 47 minute podcast discusses how three generations of Koreans have experienced mental illness. Joanne details her elders' PTSD and depression, then moves into her own story. Initially, she ignores the little voice in her head, comparing her struggles with her grandparents'. Later, on her honeymoon, she realizes that she is losing a fight with body dysmorphic disorder (BDD). Joanne describes an up and down journey toward body acceptance. As media become saturated with unrealistic beauty standards, this podcast would fit well in an undergraduate class to discuss how students face body image issues.

Film can help us look disability in the eye.

This editorial (2 pages plus 4 links to videos) argues that US Americans are uncomfortable with disabilities and that filmmaking can make it easier for them to do so. The author tells his story of being misunderstood and having awkward interactions many times because of his condition (medical name not given) that he calls "whale eyes:" misalignment of his eyes so people can't tell where he's looking. He started by making a film his senior year in college to show his family how the world looks to him and how he works around his condition to read, write, cook, and navigate the world. From there he started making more films with disabled people - one with face blindness, another going blind, a stutterer - so they could tell their stories in similar ways. Videos linked to the article are 8-12 minutes long and all focus on "experiencing" the disability: See what the face-blind person experiences (recognizable faces are shown upside down and sure enough, you can't identify them). Listen to the stutterer actively filtering out their fluency issues with an imaginary machine called a "Listenometer." Useful as insight into non-medically focused stories of disabilities, or as examples for a digital storytelling activity.

Unmasked: Illustrating Covid-19 in Okoboji

Emily Mendenhall wrote a book, "Unmasked: Covid, community, and the case of Okoboji" based on 87 interviews with people in her hometown of Lake Okoboji, Iowa in 2020. This graphic narrative, illustrated by another native of Lake Okoboji, condenses that scientific/cultural report into full-color panels of comic strip interspersed with description and analysis. Much more compelling for most undergrads than a chapter of the book would be, it focuses on "cultural squabbles and social complexities of the first pandemic year in ...a tourist town in northwest Iowa." Could also illustrate the work of a medical anthropologist within her own community rather than in an exotic location.

The internet still thinks I’m pregnant.

This is both a podcast and a print version. Author downloads an app as soon as she finds out she's pregnant, enters personal information (due date, last menstrual period), and enjoys the pictures and info that come along every week. Then she miscarries and deletes the app, but personal information has been sold to various other companies so she receives marketing as though she's still pregnant and even a box of formula samples just before her due date. She finds a way to laugh at this and take early miscarriage in stride, but muses on the irony of her pregnancy being such public property when she had told almost no one before she lost it. Useful for reflecting on the various audiences and media for our health narratives: the story we tell close friends and family interpersonally, but also the "story" that is revealed by apps and purchases. Although the author ends on a humorous note, the essay does also include details of pregnancy disclosure and health care for miscarriage.

When the Uber Driver Asks, Do You Have Any Kids?

Prompted by the Uber driver's small talk, this disabled author reflects on how an alternative self, who is not disabled, might answer--or would not have to answer, because her life would be different. Telling the story of the alternative self and life is a means of revealing some of the ways her Stargardt disease (a rare genetic eye condition) has affected the author. The story speaks to non-apparent disabilities, cultural assumptions (about women, about able-bodied-ness), stigma, and disability.