Language: English

The Almost Right Word: The Move From Medical to Health Humanities.

Concise summary of the history of medical humanities and how a distinct understanding of health humanities (using disability studies as an example, emphasizing how much of living with disabilities does not happen in medical contexts) contributes to analyzing and understanding human factors in health. Useful as background for undergraduate courses; expanding conversation for pre-health and health professional students.

Close reading a Twitter thread: Blind on the NHS

2 page (total) text presented here is a health narrative presented as a Twitter thread that raises issues that could be connected to several themes in courses related to health communication, reproductive justice, public health, narrative medicine, or more general writing courses to which the instructor wanted to add a health component. The outline includes detailed instructions for close reading the text, a central form of inquiry in narrative medicine. The goal of this instructional strategy is to can help participants attend closely to the narrative and find a point of personal connection to it. The format of the health narrative - a thread of about 20 tweets - lends itself to analyzing the role or impact of the medium on circulation of the message. Short enough to read aloud in a 45-50 minute class and work from there; could also be used in a workshop or storytelling group centered on prenatal care and/or disability.

Honoring and Witnessing Stories

This is an outline for a 90 minute undergraduate class on narrative medicine. It draws on readings by Arthur Frank and Rita Charon to talk about the importance of patient stories for patients to make sense of illness and for health care providers to provide care. It also addresses the importance of witnessing stories as a means of addressing power inequalities and health disparities. In addition to excerpts from classic works by Frank and Charon, the class session incorporates essays by a medical student (Ali) and a practicing physician (McMullen) on the significance of stories in their practice. The outline is from a practicum class, and so the class session includes narrative medicine practices of close reading and reflective writing, as well as class discussion of the assigned readings.

Honoring the Stories of Illness

In this TedX presentation in Atlanta, Dr. Charon describes her practice of narrative medicine and the connections between close reading of a text and paying close attention to what her patients tell her in clinical practice. She describes how she interacts with patients and receives their stories and the ways in which this builds an affilitation that is the foundation for care. I have assigned this video as an introduction to narrative medicine (often in conjunction with one or more readings by Charon about narrative medicine). The video is 18 minutes long so it can also be shown in class to provide a shared reference for discussion.

Narratives of prevention and redemption in opioid overdose obituaries

This journal article could be used as an example of social scientific study of naturally-occurring health narratives: those found in obituaries, an uncommon source to look for stories of opioid overdose. Raises topics of how overdose and other stigmatized health conditions are (and are not) discussed; might be combined with a literary account of addiction to show humanities vs social science understandings of a phenomenon. Abstract: Obituaries of people who died from an opioid overdose represent a new territory for understanding cultural narratives of the US opioid epidemic. Drawing on textual analysis of 30 opioid overdose obituaries published on Legacy.com between 2015 and 2020, we describe a prototypical narrative conveyed through opioid overdose obituaries, which renders symbolic meaning through the voices of the bereaved. Obituary authors reimagine their subjects as tragic heroes and reconstitute opioid addiction as a curse, plight or affliction that befalls its victims. Many of these obituaries invoke the language of public health, calling for reform, action or general awareness so other families might avoid the havoc and heartbreak of opioid addiction. We argue that obituaries contribute to broader cultural narratives of opioid addiction by reproducing tragic storylines, vindicating and humanising the deceased, framing opioid addiction as a societal, rather than individual, problem, and medicalising addiction as a brain disease beyond a persons control. Obituary texts thus intertwine a personal story with a broader societal health crisis, transforming stories of the deceased into cautionary tales and public health warnings.Data are available upon request.

“She Didn’t Think Fat Women Deserved to Have Children”: Memorable Messages From Healthcare Providers in the Context of Fat Pregnancy

Infertility is physically, emotionally, psychologically, financially, and socially challenging. For people in larger bodies, infertility challenges are intensified as providers often blame them for their inability to conceive or carry a pregnancy to term. Authors used a strategy common in communication research for 30+ years to elicit "memorable messages," all of which have to have a story behind them. Primary themes in these messages were (a) body size is a primary reason for infertility, (b) weight loss will lead to a successful pregnancy, and (c) denial of care. The method might be used or modified as a way to elicit health narratives. Particularly useful for a research methods course or to document fat-shaming from participants' perspective.

Bipolarations

David Martinez tells of his experience with bipolar disorder through childhood flashbacks that detail his family's desire to deny that anything was "wrong," their wariness of therapy, his placement in a classroom for "troubled" youth, his dropping out and his drug use. He describes the relief it was to receive, at age 32, a diagnosis and prescription medication for his condition and his subsequent work to integrate "the boy" he was and the college professor he is now. His story provides insight into how he experiences the "highs" and "lows" of his bipolar condition. He includes self-portraiture to tell his story. A recurring theme is uncertainty about what is "real"--his euphoric and dysphoric experiences, his diagnosis--and the distinction between internal experience and how one appears to others. The essay could prompt discussion about the role of family in encouraging or discouraging treatment for mental health issues, the reasons why people may not take medications, the ways people mask or express mental health experiences. This essay appeared in Please See Me, an online literary journal that features health-related stories by members of vulnerable populations, and those who care for them.

Please See Me

Online literary journal that features health-related stories in the form of fiction, creative nonfiction, poetry, and art, as well as the occasional film and interview. Issues include multiple works around a specific theme (e.g., Pain, Hope, Mental Health, Women's Health). Work features voices of patients, providers and "healthcare consumers" from their own experiences and perspectives. Written submissions are 4000 word maximum. Examples of featured works include: A mixed media art piece on pain, grief, and hopelessness from an artist dealing with loss and addiction (lil peep in Issue #2: Pain), a poem about medical debt ("Johns Hopkins Sues Patients, Many Low-Income, for Medical Debt" in Issue #9: Open Call), and a mother’s experience raising a son with intellectual disabilities and grappling with an Alzheimer’s diagnosis (Forgetting Aiden in Issue #1: Conversation).

Wake Me up When September Ends

The hit single "Wake Me up When September Ends" was written by Billie Joe Armstrong about his father who died from esophageal cancer when Armstrong was 10 years old. This popular song illustrates a health storyline that is likely overlooked by many casual listeners. Listening to the song, paying close attention to the words, could open discussion of grief and loss.

BDD, Fighting the Voice of Imposter Syndrome, and an Act of Power

This 47 minute podcast discusses how three generations of Koreans have experienced mental illness. Joanne details her elders' PTSD and depression, then moves into her own story. Initially, she ignores the little voice in her head, comparing her struggles with her grandparents'. Later, on her honeymoon, she realizes that she is losing a fight with body dysmorphic disorder (BDD). Joanne describes an up and down journey toward body acceptance. As media become saturated with unrealistic beauty standards, this podcast would fit well in an undergraduate class to discuss how students face body image issues.