Acupuncture: Susan’s Story – University Hospitals

Acupuncture: Susan’s Story – University Hospitals

Content type: Health story

This minute and a half long youtube video from University Hospitals Connor Integrative Health Network tells Susan’s story, who had severe back pain from a bulging disc that severely limited her mobility. After her regular physical therapy only provided limited relief, she decided to seek out a more holistic treatment and use acupuncture along with her regular treatment. Susan, and her naturopath Lina Sbrocco, explain how acupuncture has allowed Susan to return to her daily life activities by greatly decreasing her pain. The video shows what the treatment looks like in order to demystify acupuncture, but also frames it as a last resort, and complementary to biomedicine rather than as an alternative.

Using this video in class provides a practical example of a short narrative that could stimulate discussions on complementary and alternative medicine and holistic health, as well as how medical facilities advertise using patient testimonials. The video advertises acupuncture as something that University Hospitals offers, and uses Susan’s success story to encourage patients to use their medical services.

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Music Therapy in Larry’s Life

Music Therapy in Larry’s Life

Content type: Health story

This five minute video from AMTA music therapy shares Larry’s story, a musician, teacher, father, and husband who lost many functions following a seizure. The video contains an interview with his wife, and board certified music therapist Moreen Bosch, to show how music has helped Larry regain his self-confidence and joy in music. This video could be used to examine the role of arts, specifically music therapy, in the healing process.

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Living with HIV: Six Very Different Stories

Living with HIV: Six Very Different Stories

Content type: Health story

This article from The Guardian features six diverse narratives of individuals living with HIV, highlighting the evolution of the HIV/AIDS experience over the past 30 years in Britain. For example, Jonathan, diagnosed during the early epidemic in the 1980s, reflects on living with HIV for over half of his life, explaining how he managed without medication until 1996 and has come to embrace life with HIV through activism. Another example is Jo, diagnosed at 60, who discusses how she navigated the shock of her diagnosis and the perceptions associated with being an older woman with HIV. She’s open about her diagnosis because she wants to change perceptions about people living with HIV. 

This article offers students an opportunity to reflect on diverse experiences with the same illness, and brings up topics such as stigma, activism, and media representation of illness and how these change through time.

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Taking Turns

Taking Turns

Content type: Health story

Taking Turns is a graphic novel that explores HIV/AIDS Care Unit 371 at the Illinois Masonic Medical Center in Chicago during the peak of the AIDS epidemic. Through archival records, oral histories, and MK Czerwiec’s first-hand experiences as a nurse on the ward, the novel sheds light on the challenges and resilience of the community during this critical period. With simple illustrations and a practical four-panel format, “Taking Turns” delivers a direct and accessible narrative, offering readers an opportunity to not only absorb the history easily, but prompting empathetic reflection for each member of the community – patients, families, and medical staff. This novel could provoke discussions about caregiver narratives, and the efficacy of graphic novels in communicating narrative.

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HIV, Mon Amour: Poems by Tory Dent

HIV, Mon Amour: Poems by Tory Dent

Content type: Health story

“HIV, Mon Amour,” a collection of poems by Tory Dent, transcends conventional narratives surrounding HIV/AIDS. Dent, who was HIV positive, employs lyric poetry to create a deeply personal and bracingly honest narrative, resisting the dominant journalistic and political expressions associated with the epidemic. Through her unique approach, Dent navigates the stigmas attached to HIV/AIDS, rejecting both the stigmatizing and activist-driven narratives. Her use of language, range of feeling, and occasional self-doubt reveal a nuanced exploration of her experience. This collection serves as a powerful testament to the complexity of individual lives affected by HIV/AIDS, challenging pre-existing socio-political frameworks and fostering a deeper understanding of the human experience behind the statistics and red ribbons. Dent’s poetry could be used to analyze how illness narratives are far from one-dimensional – the poetry showcases the often contradictory feelings wrapped up in illness by encompassing pain and joy, isolation and community, the private and the public. “HIV, Mon Amour” could also be used to examine poetry as a narrative form.

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No One Left to Save

No One Left to Save

Content type: Health story

Rachel Berlin recounts her experiences as a third year medical student on an internal medicine clerkship and the relationship she had with the senior resident who supervised her work, Hassan.  The story touches on several themes, including the process of developing competence in diagnosis through practice with patients and interaction with a mentor, and the emotional work of learning to treat patients in a system in which you aren’t always around to learn the outcome of care and in which you don’t always have time to respond as you might wish to patients who face serious diagnoses or who are dying.  An element of the story also concerns Hassan’s status as an immigrant far away from his family in an unnamed war-torn country, repeating his residency in order to qualify for a US medical license.

In my course on the role of narrative in medical practice, I teach a week on how medical students are socialized to become physicians and the role of storytelling in medical practice and socialization to medical practice.  This brief personal story would be a useful companion piece to some of the anthropological research I teach.

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Health Stories Project

Health Stories Project

Content type: Health story

Health Stories Project has an online presence in multiple platforms, including this website as well as Youtube, Facebook, and Twitter.  Patients are invited to tell their stories in response to a variety of prompts.  The site includes a large, searchable collection of stories about a wide variety of conditions and experiences.  The stated purpose of the site is “to give people opportunities to share their personal health experiences and to learn from the experiences of others.”  Digging into the privacy policies reveals that information provided can be used for targeted advertising and the site is owned by HPG, LLC, which is described on an assets data management site as “a provider of patient engagement services to pharmaceutical and biotechnology businesses through managed patient and caregiver networks in a variety of therapeutic areas.”

The site is a source of stories, but may be more important for prompting discussion about informed consent and how patient stories are used, as well as how to weigh the benefits of being able to share one’s story (and read stories by others) with the other uses to which these stories may be put.  The site states openly at the outset that they are not a non-profit and it doesn’t hide these multiple purposes (nor is it difficult to track down the connection to HPG, LLC); however, they don’t lead with this, either.

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Power With Anthology: Storytelling for Social Justice

Power With Anthology: Storytelling for Social Justice

Content type: Health story

From the website:

“POWER WITH is a collection of multimedia stories that uplift the lived experiences and perspectives of community members, patients, and health care workers and trainees. Specifically, POWER WITH spotlights how our experiences with oppressive (or “power over”) structures impact us individually, while also demonstrating that we are all connected through a greater shared human project. These stories inspire us to imagine what a system that embraces relationships and collective change (or “power with”) could look like.”

As of 10/25/23, some of the examples from the website were as follows:

1. “Ariah Tesema, a pre-med student, shares her journey of pursuing a career in medicine and embracing her multicultural identity. This begins with immigrating from Ethiopia to the United States as a young child and discovering that her multicultural life does not fit neatly into the boxes American society tries to place her in.”

2. “Andrea Morgan, a doctoral student at OHSU, shares her experience moving to Portland from Southern California and her dream to share her love of science with children who come from similar backgrounds.In addition to her studies, Andrea is leading a Racial Equity & Inclusion grant called Black Like Me 360, a project that allows viewers to see and hear in a first-person experience the day-to-day lives of Black Portlanders on campus and in the city in an art installation.”

3. “As a college student, Toren Ikea-Mario helped his father through a difficult cancer diagnosis and treatment. In the process, he realized that the healthcare system was broken, especially for people like his father, and was determined to be a part of the solution.”

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Jeraldine’s Story: There is Hope

Jeraldine’s Story: There is Hope

Content type: Health story

This is one of several stories on the Patient & Family Storytelling website.  The story begins with Jeraldine’s traumatic early childhood experiences and continues to describe her alcoholism and its impact on her life.  Following treatment for cancer and liver disease, she reconnects with her culture.  The story could prompt discussion of intergenerational trauma and its health impacts as well as the importance of providing culturally appropriate healthcare services that address trauma and holistic care.

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A Lion in the House

A Lion in the House

Content type: Health story

“A Lion in the House” is a 3-hour and 45-minute long documentary about childhood cancer available on Netflix. This emotional and powerful documentary follows the lives of five children battling cancer and spans over six years. The film provides an intimate and unfiltered look at the challenges faced by the young patients, their families, and even the healthcare providers caring for them. Some of the challenges addressed in this film include parenting a sick child, experiencing pain and isolation as a sick child, financial struggles as a family fighting illness, and the toll childhood illness takes on physicians’ emotional wellbeing.   

Using storytelling and candid interviews, the documentary explores the complex emotions of grief, sadness, hope, and so many more that arise when confronting a life-threatening illness like cancer. Viewers will gain insight to the multi-layered challenge that cancer is, confronting topics of decisions surrounding death, pain, isolation, friendship, and financial stress. The openness of this film reveals the difficult decisions cancer brings, especially when choices have to be made for a child. This film is a very moving and real portrayal of the waves of heartbreak and hope that come with childhood cancer. This film is unique as it shares the perspectives of everyone involved in the process of treating cancer and could be used in any course interested in working with a very raw personal narrative. One example of a contrast revealed is the different challenges faced by parents, children, and physicians. Children experience the pain and loneliness, parents have to make life-changing decisions for their children, and physicians have to inform about and execute treatment plans taking into account both physical and emotional limitations. Because of the many perspectives shared, it could be a useful film for healthcare students or for any students learning about childhood illness, death and dying, and approaching medical care holistically. Additionally, it raises questions regarding consent and making medical decisions for children, and could be used in a course surrounding medical ethics. 

One of the stories told in the film is the story of Tim, who was diagnosed with Hodgkins Lymphoma. Tim is a vibrant and spunky fifteen year old who’s symptoms were initially brushed off by physicians. He had a persistent cough and swollen lymph nodes, and was eventually emergently rushed to the hospital, where he got his diagnosis. Tim has a large family, living with siblings, extended family, and his mother, Marietha. In his teen years, Tim says that he enjoys all of the attention he gets because of his diagnosis, and is resistant to take his medications and listening to his mom and team of physicians. A nurse explains that by not listening, Tim is upholding his “cool” image, and eventually needs a nasogastric tube because of it. On top of his lymphoma, Tim lost his father, which his psychiatrist explains has really limited his social life. Through everything, even a period of his cancer worsening, Tim persists and remains joyful. Eventually, Tim joins a school program for students who are behind, like him, and begins a job at McDonalds. After a special trip that he and his mother take to Chicago, Tim becomes incredibly ill, once again. Resistant to the chemotherapy, his condition worsens, and he becomes worried about his death. Tim ends up dying, and the film covers his medical team and family’s grappling with his death. Tim’s story, specifically, is complex and could spark conversations on ethics, facing death as a young person, balancing being a teen and being sick, parent loss, single parenthood, as well as why his story, like others, is an important one to be told.

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