Type of Submission: Health Story

The ART of infertility

This is the link to a website for a national arts organization based in Michigan and Wisconsin. The organization curate art exhibits that portray living with infertility, designes curricula and writing worksins, plans outreach events, and advocates for infertility rights. They dsribe their missions as follows: “Through art, we break the silence around reproductive grief and push back against common misconceptions. We invite you to join us in our fight to make infertility visible.”

The site includes galleries of exhibitions, including photos with artist statements and a blog that features personal narratives about the experiences of infertility.

Consolarte: The Artist’s Grief deck en espanol.

A collection of artistic images paired with concrete suggestions for dealing with grief. The “deck” began (and continues) as an Instagram page that allows people to submit artwork+activity, and now exists in physical form as a card deck. This link goes to Spanish language version; the physical card deck and original Instagram site are in English. The suggestions described on each card could be used as discussion activities in intermediate level and up courses, and might be particularly well suited for community groups.

Penn State Collection of Graphic Medicine Narratives

Organized by each year the class has been taught, this is collection of graphic narratives illustrates issues medical students face with details of med school life: imposter syndrome, harsh criticism, feeling insecure vs thinking they can save a patient’s life if they go with their instincts, etc. Amazing range of writing and drawing styles, very candid, some quite powerful. Some use medical terminology beyond interest or understanding of lay reader.

Cigarettes

Juice WRLD (Jarad Higgins) was a rapper who was open about his struggles with addiction, depression and anxiety. He died of a drug overdose in 2019. Many of his music videos can be read as illness narratives. This one has an ultimately upbeat message, as the protagonist goes to AA and gets sober. It begins with a “Text this number for confidential help” message onscreen. This could work in any music/popular media class to talk about health narratives or could be part of an assignment to build a play list around a topic with annotations.

As a physician, why write?

This is the first post in a new blog on U Mass Med School Medical Humanities Lab, 2019. It is an articulation of why all physicians are storytellers and why most would do well to write them down. This could be beneficial for medical students to reflect upon in order to show the importance of health narratives to new physicians.

Aftershock

This documentary tells the stories of two Black women who died during or after childbirth, through interviews with their family members. The film examines the higher rates of infant mortality in the US, and especially for Black women, who are 3 to 4 times more likely to die from childbirth-related reasons than White women. The film shows how family members became activists for maternal health care. The award-winning film premiered at Sundance in 2022 and is (at the time of this writing) available on Hulu. It could be used to show how narratives can bring statistics to life, as well as the power of narrative for social change.

The Hidden Dying of Doctors: What the Humanities Can Teach Medicine and Why We All Need Medicine to Learn It

This review of Kalanithi’s “When breath becomes air” focuses most on the opening story of a young colleague who took his own life, the problem of medical student and physician suicide/ depression/burnout, and how humanities education could alleviate the suffering of doctors by connecting them with the human side of medicine, their own and that of patients. This is very useful as a first-week reading in a Foundations of Health Humanities course or as a reference for a talk to aspiring med students

It’s the ‘life’ in end-of-life that matters

Prompted by Atul Gawande’s New Yorker essay (“Letting Go,” which addresses similar themes as his book, Being Mortal), the author reflects on two experiences he had as a resident in the NICU, one in which all possible medical treatment was pursued inappropriately and another in which extra-ordinary measures were not applied so that a family could spend a final day with a fatally ill newborn. The author blames the broader medical system, and says his frustrations with that system led him to his current occupation as a health services researcher.

In contrast to end-of-life stories that involve elderly patients or terminally ill adults, this blog post provides vivid examples of NICU treatment decision-making.

Letting go: What should medicine do when it can’t save your life?

Tells several of the wrenching stories from his book (Being Mortal), making points about medicine’s reluctance to stop treatment and acknowledge the patient is dying, even when the chance of improvement is slim to none. “Modern medicine is good at staving off death with aggressive interventions–and bad at knowing when to focus, instead, on improving the days that terminal patients have left.” 13 pps; suitable for undergrads, professional students, maybe medical students; describes hospice treatments and misconceptions about hospice.

Speaking of Addiction

Dr. Meaghan Ruddy speaks on the importance of the language that health care providers choose to talk about drug addicts, specifically opioid addicts. She shares her story of when she critiqued the label “drug-seekers” in an emergency department that had many such cases. Dr. Ruddy then calls for a focus on destigmatization for drug addiction in future generations of medical professionals. Relevant to pre-med, medical students.