Tag: HIV/AIDS

Living with HIV: Six Very Different Stories

This article from The Guardian features six diverse narratives of individuals living with HIV, highlighting the evolution of the HIV/AIDS experience over the past 30 years in Britain. For example, Jonathan, diagnosed during the early epidemic in the 1980s, reflects on living with HIV for over half of his life, explaining how he managed without medication until 1996 and has come to embrace life with HIV through activism. Another example is Jo, diagnosed at 60, who discusses how she navigated the shock of her diagnosis and the perceptions associated with being an older woman with HIV. She’s open about her diagnosis because she wants to change perceptions about people living with HIV. This article offers students an opportunity to reflect on diverse experiences with the same illness, and brings up topics such as stigma, activism, and media representation of illness and how these change through time.

Taking Turns

Taking Turns is a graphic novel that explores HIV/AIDS Care Unit 371 at the Illinois Masonic Medical Center in Chicago during the peak of the AIDS epidemic. Through archival records, oral histories, and MK Czerwiec's first-hand experiences as a nurse on the ward, the novel sheds light on the challenges and resilience of the community during this critical period. With simple illustrations and a practical four-panel format, "Taking Turns" delivers a direct and accessible narrative, offering readers an opportunity to not only absorb the history easily, but prompting empathetic reflection for each member of the community – patients, families, and medical staff. This novel could provoke discussions about caregiver narratives, and the efficacy of graphic novels in communicating narrative.

HIV, Mon Amour: Poems by Tory Dent

"HIV, Mon Amour," a collection of poems by Tory Dent, transcends conventional narratives surrounding HIV/AIDS. Dent, who was HIV positive, employs lyric poetry to create a deeply personal and bracingly honest narrative, resisting the dominant journalistic and political expressions associated with the epidemic. Through her unique approach, Dent navigates the stigmas attached to HIV/AIDS, rejecting both the stigmatizing and activist-driven narratives. Her use of language, range of feeling, and occasional self-doubt reveal a nuanced exploration of her experience. This collection serves as a powerful testament to the complexity of individual lives affected by HIV/AIDS, challenging pre-existing socio-political frameworks and fostering a deeper understanding of the human experience behind the statistics and red ribbons. Dent’s poetry could be used to analyze how illness narratives are far from one-dimensional – the poetry showcases the often contradictory feelings wrapped up in illness by encompassing pain and joy, isolation and community, the private and the public. "HIV, Mon Amour" could also be used to examine poetry as a narrative form.

Josh’s Own Story – Living with HIV

This health narrative comes from a personal Blog entitled I’m Still Josh. Josh Recounts his journey from testing negative for HIV in November 2011 to being diagnosed with HIV-1 in January 2012. Despite the initial shock and fear, he remained resilient and committed to raising awareness about HIV, challenging laws in Tennessee and stereotypes associated with HIV. Josh highlights that HIV is not a punishment and that individuals living with HIV are not "dirty." The author discusses the importance of informing sexual partners due to legal obligations but expresses a positive attitude, asserting their undetectable status and the ability to maintain a fulfilling life, including engaging in sexual relationships.

In a health narratives class, this story could be utilized to explore the emotional and social aspects of living with HIV. It provides insight into the personal challenges, societal stigmas, and legal implications associated with HIV. The narrative encourages discussions on the intersection of health, law, and personal identity, as well as the importance of destigmatizing HIV and promoting awareness. Josh’s narrative could serve as a platform for discussions on public health policies, the impact of legal frameworks on individuals with HIV, and the role of storytelling in health advocacy.

Living With HIV for 15 Years: What I Have Learned, Loved, and Loathed

This narrative traces Henry’s journey as a person living with HIV, offering a profound exploration of the emotional, physical, and social dimensions of his experience. Henry shares his experience of discovering his sexual identity and the eventual acceptance of being queer. Henry was diagnosed with HIV in 2006 and his story touches upon the challenges faced during the seroconversion period, reluctance to start antiretroviral therapy, and his subsequent health struggles. Henry also reflects fifteen years post-diagnosis on the dual nature of HIV as both a gift and a curse, acknowledging its impact on their perspective and relationships. He encourages others to be proactive in their care, emphasizing the advancements in HIV competency in the medical, political, and social spheres. The story concludes with a powerful message of self-compassion, urging individuals living with HIV to be good to themselves and recognizing that HIV is a condition, not a death sentence. In a health narratives class, this story could be used to delve into the multifaceted aspects of living with HIV, from the initial shock of diagnosis to the ongoing management of the condition. It offers insights into the importance of community support, mental health services, and proactive healthcare in navigating life with a chronic illness. Additionally, the narrative could serve as a platform for discussions on stigma, disclosure, and the evolving landscape of HIV in healthcare and society.

What I’ve learned after living with HIV in secret for years

ABC News producer Tony Morrison shares his personal journey living with HIV in a powerful essay on the eighth anniversary of his diagnosis. He discusses the emotional challenges, societal stigma, and the impact on his dating life. Morrison emphasizes the importance of disclosure and understanding in relationships, and he challenges HIV-related stereotypes. His essay explores the impact of societal attitudes and stigmatization on mental health and the significance of self-acceptance and living openly. Morrison concludes with a message of resilience, choosing to celebrate life and an open dialogue surrounding HIV.

This narrative can stimulate discussions on topics like HIV education, destigmatization, and the importance of empathy and support for individuals living with stigmatized chronic illnesses. Teachers and students can use the essay to foster understanding, promote open dialogue, and encourage others to critically examine societal attitudes towards HIV and AIDs.

Familia conoce a mujer que recibió corazón de hija con VIH

Shaffrey describes the life of a woman, Brittany Newton, who suffered from a heroin addiction and died when she was 30 years old. She was also HIV-positive--for many years, doctors have transplanted organs from one HIV-positive person to another. This happened in the case of Brittany's donated heart, and Brittany's family was able to hear her heart beating in Maria's, the transplant recipient's, chest. 5 minute read, appropriate for upper intermediate Spanish learners.

Mi vida con Sida: La historia de Carolina

Details a young Chilean woman's experience with AIDS. Her first symptoms were a severe pneumonia and first diagnosis was depression; finally tested positive for AIDS. Details both the stigma of having AIDS and the often supportive reactions from family members. Chilean dialect features may make this otherwise brief, accessible story a stretch for non-native speakers before upper intermediate level. Good example to discuss stigmatized health conditions, misdiagnosis, dealing with family members' reactions.

Call me Francisca

Francisca had always had difficulty getting pregnant. That is why she was exhilarated when she found out the news that she was having a baby. However, after some tests, Francisca was informed that she was HIV positive. Her doctors gave her antivirals and frequent checkups to keep her viral load low, but they did not inform her about much else. She felt guilt-ridden. When the time came for her birth, she had a C-section performed by a different doctor. After her son was born, a nurse informed her that her sterilization went well. Francisca later sued the hospital for a violation of rights. This narrative is available in a Spanish transcription and as an English translation. It originates from Chile in 2002. As a patient, Francisca's trust and rights were violated. Accessible to upper intermediate Spanish readers; transcription helps with audio. Useful for discussion of reproductive rights, women's health.

True Stories: Living with HIV

This web page provides the stories of three people with HIV. Each story is unique, but they have all come to embrace their lives with HIV, providing support to those who recently received a diagnosis. Chelsea White now runs an HIV and AIDS adolescent outreach program. Nicholas Snow hosts a radio show that touches many topics, including life with HIV. Josh Robins manages a blog to emphasize that he is still the same person, to reduce the stigma of AIDS, and to connect with others who also have the disease. This 10-minute read could be used to discuss stigmatizing conditions, perhaps to have general audiences reflect on stigma or a starting point for further research into how those diagnosed with HIV can lead the lives they had before the diagnosis.