Tag: healthcare provider

Amid the Wait

This personal essay, appearing in JAMA’s regular “A Piece of My Mind” feature, details a health care provider Cia Merin Bishop’s experience of going through unsuccessful infertility treatment while practicing medicine and caring for patients in a pediatric intensive care unit. The essay poignantly portrays the emotional experience of undergoing infertility treatment. It also speaks to what it is like to be both physician and patient and the coping, support, and resilience she marshalls in order to continue to function at work while dealing with the physical and emotional impact of her own medical treatment. The author points out that this experience is not uncommon, citing studies that suggest about a quarter of female physicians experience infertility and 31% of female oncologists reported infertility requiring counseling or treatment. As she says, “I write this piece in solidarity with other women physicians. I write this piece as an anthem of our strength. And I write this piece to acknowledge the suffering within us, as we tend to the suffering around us.”

The dual focus of this moving and readable essay would make it equally useful for discussions of infertility and reproductive health as well as physician stress and resilience. It could also be a useful in a course or unit on narrative medicine as an example of how physician’s writing their own stories helps to humanize medicine.

Together Well: Documenting COVID’s Impact through Storytelling

Together Well is an online collection of stories (some audio and written but most video) about experiences of COVID. This collaboration between the Relational Leadership Institute (www.relatelab.org) and the Northwest Narrative Medicine Collaborative (nwnmcollaborative.org) was designed to “collectively make sense of the pandemic’s impact on all members of the community: nurses, social workers, patients, family members, doctors, caregivers, students, chaplains, scholars, educators, activists, and artists.” In addition, the stories were assembled in the hope that reflecting on pandemic experiences can provide a basis for change in healthcare and communities that “better center connection, relationships, and well-being.” Stories document not only hardship but also ways that the COVID crisis led teams, communities, and individuals to innovate, collaborate, and change in powerful ways that we may wish to continue as we move forward.

The 37 stories in the collection are listed on the webpage; each has a thumbnail and an image. There is also a video (the first entry in the collection) about the project. Stories are brief enough to show in a class or workshop. The videos are hosted on YouTube so it is possible to provide closed captioning and transcripts are also available.

Why I Became a Speech-Language Pathologist: My SLP Story

Lisette Edgar, a professional speech language pathologist (SLP), recounts her journey discovering the field through her son’s speech challenges and ultimately deciding to pursue a career as an SLP. She details her son’s pronunciation difficulties that were first noticed when he was three, and how, in getting him assistance, she was catapulted into the unfamiliar world of speech therapy. Due to a shortage of speech therapists at her son’s school, Edgar ended up doing a lot of lessons and practice at home. When she began working as a substitute teacher at her son’s school, she got even more exposure to the work speech therapists do, and she decided to go to graduate school to become an SLP. On Edgar’s blog, there are many resources and lessons that focus on subjects from autism to apraxia to stuttering. This post would be useful in a pre-professional medical class to inform students about the different pathways they can take with their medical careers aside from being physicians. It would also fit very well into a graduate SLP class as an introduction to how various people get involved with the field, and how signs of speech difficulties show up—and can often be overlooked—in young children. One assignment that could be created off of this is to have students browse the resources and then create an exercise of their own that could be used to help children with a speech condition.

Worlds Apart

Worlds Apart is a documentary split into four 10-15 minute sections that each focus on a different cross-cultural health experience. We delve into a Muslim man’s journey with stomach cancer when he turned down chemotherapy due to interference with daily prayer. We follow his daughter communicating with the doctor to see if there are any ways that both could be achieved. It also tells the story of a Lao woman with a hole in her heart who can receive surgery to fix it, but whose mother and grandmother are concerned that the scar will inhibit her Buddhist reincarnation. We then see a Black man waiting for a kidney transplant who searches for a nephrologist he can trust and speaks out on the disparity in waiting times for transplants between white and Black patients. Lastly, there is the story of when a Puerto Rican woman with diabetes, hypertension, asthma and depression turns to home remedies after her mother’s death, which she believes was caused by taking too much prescription medication.

This documentary showcases narratives that illuminate the limits of Western medicine and expand our ideas of how the American medical system can grow to be more inclusive, equitable, and sensitive. From the intersection between medicine and religion to institutional racism to the clash between types of medicating, Worlds Apart is an excellent resource to learn about a variety of cross-cultural healthcare topics in a person-centered manner. It would fit into more sociological classes like cultural anthropology or a world medicine class, but it could also be useful in a training course for pre-med or med students to broaden their ideas of how to individualize healthcare. It could be shown in class to prompt a discussion or assigned as homework along with a written reflection or essay assignment. View the “Facilitator’s Guide” in the Teaching Materials tab to find more specific ways to integrate it into a course. This documentary is not open access, but it can be viewed on WorldCat, which many institutions have access to.

Worlds Apart Facilitator’s Guide

This is a thorough facilitator’s guide on how to facilitate class discussions on the cross-cultural healthcare documentary Worlds Apart (a detailed summary can be found in the Search for Stories tab). In brief, Worlds Apart is a documentary split into four 10-15 minute sections that each focus on a different cross-cultural health experience, including a Muslim man’s journey with stomach cancer, a Lao woman with a hole in her heart, a Black man waiting for a kidney transplant, and a Puerto Rican woman with diabetes, hypertension, asthma and depression. This documentary showcases narratives that illuminate the limits of Western medicine and expand our ideas of how the American medical system can grow to be more inclusive, equitable, and sensitive.

The facilitator’s guide provides background on the filmmakers and their intentions. It includes suggestions for facilitators such as setting ground rules for discussion and asking students to jot down notes during the documentary. The four-part narrative-driven documentary is summarized, and then each section is broken down in great detail, so even someone who did not watch the film could understand the exact circumstances of each family and individual being featured. After each synopsis we also receive medical background information and a variety of discussion questions specifically tailored to different issues discussed in the stories. Each section has a separate “focus” also outlined, ranging from language barriers to explanatory modules to informed consent to racial/ethnic healthcare disparities to non-adherence to medications. This guide was created “to give health care professionals an engaging experience through which to explore ideas about cross-cultural issues in health care and to learn from the actual experiences of both patients and clinicians,” but could also easily be adapted to a university classroom setting to guide student discussions. The guide does not include any assignments, but any of the issues headlining the discussion topics could work well as research essay prompts.

Another GSW

“Another GSW” by Odeya Kagan is a short personal narrative detailing a young doctor’s encounter with a patient who had extensive injuries from a single bullet wound, and how the experience made her consider the ramifications of gun violence in America. As Kagan looks forward to her medical career, she prioritizes never becoming numb despite the frequency and normalization of gun shot wounds (GSWs). This story could prompt discussion of gun violence as a public health issue and the ways in which gun violence is ingrained into American culture. It could also be used to address the topics of physician burnout or the mental taxation of working in trauma and emergency departments. Hospital residents in particular may be able to relate to the sentiments of the author.

Pulse- Voices from the Heart of Medicine

Pulse- Voices from the Heart of Medicine is an online publication that features stories, poems, haikus, and visual works from various voices within the healthcare field. Stories come from health care providers in various roles and from patients and family members. For example, “Cultivation Also Starts With C” is a poem that uses the invasive, difficult to remove plant Japanese knotweed as a metaphor for cancer and “Another GSW” details a young doctor’s encounter with a patient who had extensive injuries from a single bullet wound, and how the experience made her consider the ramifications of gun violence in America.

Length of items ranges from 40 to 400 words for written works. Each month’s issue is on a theme (recent examples included Alone, Coming Undone, Unsung Heros) and the “New Voices” section features “stories by those whose faces and perspectives are underrepresented in media and in the health professions.”

The website offers several ways to search. For example, one can click through content by year, all the way from 2023 to 2016. When you click on a story, you can also see a lengthy list of “popular tags” that you can click on to search by subject matter. The “visual works” tab includes an option to see a slideshow of submissions, as does the “haikus” tab, which could be helpful for more efficient browsing. Other notable features are that the stories and poems tabs display a phrase from each submission as an attention-getting preview. Similarly, the “more voices” tab displays a themed photograph with each submission.

Front Lines: Poets & Physicians Document COVID-19

This project paired poets with NYC-area physicians to write poems as a way to provide space within and beyond the creative process for catharsis, shared understanding, and healing. The project started in spring of 2020 as a collaboration between two sisters–poet Elizabeth Fernandez and physician Nicole Fernandez. At the time I accessed this (8/11/22) there were 13 poems by 8 poets, written “for” 8 physicians. The poems (from June and July 2020 and October 2021) capture the experiences and emotions of these front-line health care providers during the early part of the COVID-19 pandemic.