Tag: BIPOC

My Abortion is Not a Sad Story

Ebony Wiggins shares her personal experience of having an abortion at 22. She provides insights into the circumstances, decision-making process, and emotional aspects surrounding the event. Growing up in a politically aware household, the narrator emphasizes the importance of choice, destigmatizing abortion through storytelling. The narrative discusses the impact of restrictive abortion laws, particularly on women of color. This narrative can prompt discussions on individual autonomy and the influence of societal and political factors on reproductive health care. Wiggins’ story also shows the importance of diverse perspectives in understanding reproductive health issues. It serves as a case study for examining the intersectionality of reproductive rights and the potential impact of legislation on different demographic groups.

What Does It Mean to Die?

“What Does It Mean to Die?,” an article written by Rachel Aviv, chronicles the conflict between the Winkfield family and the medical staff who declared Jahi Winkfield deceased from brain-death. After a tonsil removal surgery, Jahi began coughing up blood and bleeding from her nose profusely. Her mother, Nalilah, the principal interview throughout the article, described how her daughter was not receiving proper care, which Nalilah attributes to racial discrimination. After continued neglect in the ICU, Jahi’s heart stopped, and two days later, she was declared brain-dead. She was put on a ventilator, but in California, there is a limited amount of time a hospital will allow a patient to remain in care. Due to the malpractice that had already occurred in her daughter’s care before “death,” and religious bases, Nalilah argued for her daughter’s right to remain on the ventilar and be cared for. The article offers contextual information regarding California law and insights from bioethics experts, as well as working physicians. After deciding to move to New Jersey due to their laws regarding religious-based continuation of care laws. Aviv details the controversy that emerged from this case, especially from the interest of the press and the pushback from medical professionals. Jahi continued to receive care from nurses and remained on a ventilator. Nalilah, her family, and some medical professionals believe that Jahi still is not “dead;” Jahi has physical responses, menstruates, and has a lowered heart rate at the sound of her mother’s voice. These facts prove, for some, as evidence for her right to care. However, some argue that this could be a shared delusion in the family. Regardless, the article presents many perspectives that ask the audience to understand the situation from different sides, while still staying grounded in Jahi’s story and Nalilah’s fight for care.

This story could be used in discussions of modern-day bioethics, especially in discussion of continued discrimination of BIPOC patients and families. Furthermore, it could lead to a discussion about the right to care and how we define “death” in different contexts.

The Immortal Life of Henrietta Lacks

This book is a biography of Henrietta Lack, a black woman who died of cervical cancer in 1951. Before her death, Henrietta Lacks’ cells were harvested from her cervical tumor without her knowledge or consent. The HeLa cell line originates from these cancerous cervical cells, and it is the cell line most used for any study on human cells. Neither Henrietta nor her family were consulted nor informed about the mass distribution and use of her cells until decades later when her cells were already the cause of many medical discoveries and breakthroughs. This book was the first to paint the whole picture of the human behind the most famous cell line.

This book might be used in courses on research and medical ethics, on health (in)equities, or on narrative medicine. For example, it sheds light on all of the factors, both medical and societal, that led to a lack of adequate or ethical care. Her story shows the importance of health stories for humanizing medicine. It allows for reflection on the history of healthcare as it relates to women and people of color (specifically black people and black women).

Allyson Felix es campeona de la salud materna

Allyson Felix is an Olympic athlete who experienced complications with her pregnancy. She prepared for her pregnancy, exercising and trying to take every precaution. However, on a routine check-up, she was informed she had grave preeclampsia. Frightened and confused, Felix learned black women were at a higher risk for these complications. Felix received quality care and recovered from the disease, but wants all pregnant women to be aware of this risk. This is a quick read of about 10 minutes for intermediate level Spanish readers. The Q & A interview format help with comprehension. Readily usable in a medical Spanish class to expose students to health disparities (risk factors, access to care, outcomes) or in a mid-level composition, conversation or health narratives course.

BDD, Fighting the Voice of Imposter Syndrome, and an Act of Power

This 47 minute podcast discusses how three generations of Koreans have experienced mental illness. Joanne details her elders’ PTSD and depression, then moves into her own story. Initially, she ignores the little voice in her head, comparing her struggles with her grandparents’. Later, on her honeymoon, she realizes that she is losing a fight with body dysmorphic disorder (BDD). Joanne describes an up and down journey toward body acceptance. As media become saturated with unrealistic beauty standards, this podcast would fit well in an undergraduate class to discuss how students face body image issues.

Reflective MedEd

The “About” section of this blog explains its purpose as follows: “Reflective MedEd is dedicated to reflective practice in medical education and care of the person. We publish contributions that offer insight and illumination into the experience of educating the next generation of physicians. We welcome the thoughts of educators, patients, and all who foster awareness of the human dimension of doctoring and develop advocates for the just and equitable treatment of all patients.” Especially welcome are submissions that address “social justice and a concern for marginalized and vulnerable populations, the role of faith in medical practice, and ethical standards of decision making.” Reflective MedEd is supported by the Ralph P. Leischner, Jr., MD, Department of Medical Education at Loyola University Chicago Stritch School of Medicine.

Blog posts include both personal narratives and reflective essays from a variety of experiences and perspectives. For example: “How COVID Impacted my First Patient and Patient Death Experience,” “What I have Learned About Trust from Black Women,” and “The Wolf: How skeptical should we be of our patients?”

Heart Sounds

In this 5 minute read, a first year medical student discusses treating a patient whose family had to overcome indifference in the ER in order for him to receive treatment. Additionally, the medical student illustrates managing the unknown when assisting a patient with an advanced and nuanced condition. The student decides that the best treatment they can provide is listening to the family’s complaints, fears, and happy moments in order to encourage them to keep believing in this patient’s future.

The story touches on cardiology as a specialty and would benefit pre-medical undergraduates as well as professional students recently starting their health profession. It highlights the importance, and difficulty, of active listening.

René (Video Oficial)

This 7-minute music video tells Rene’s (Residente) story of growing up “lower middle class” but secure in Puerto Rico. Describes happiness, sadness and the fragility of being a famous rapper and how he uses alcohol to deal with powerful feelings: loneliness, fear, grief – but music and baseball are more stable healing forces. The video has accurate subtitles in both Spanish and English and moves quite slowly (and can be slowed even further). Many scenes and details of Puerto Rican culture, excellent illustration of dialect features. Could be used to discuss alcoholism, addiction, grief in an upper intermediate or higher Spanish course.

COVID-19 through the Eyes of a Black Medical Student

Shuaibu Ali is a medical student who reflects on how his experiences growing up in an urban environment increased his risk for various health conditions. He makes the case for the importance of personal stories from individuals from historically marginalized groups as a way of personalizing statistics on health disparities and exposing conditions that create them.

I have used this essay in an undergraduate narrative medicine practicum class to prompt discussion about the importance of hearing stories from marginalized groups and the power of story to mobilize social change.

Patient & Family Storytelling: Real People. Real Experiences. Real Impact.

This Alberta Health Services website lists 107 videos from patients and their families. There is a brief description of each video (e.g., the health condition, who tells the story, what larger issue or point the story illustrates). It is possible to search the collection (e.g., for stories related to “cancer”). Some examples of health narratives on this website include:

Rose’s Story: Joy and Grief, a look into how healthcare providers can help us navigate tragedy and foster healing. Rose explores the impact and experience of the stillbirth of her son and daughter. (The website includes a content warning.)

B’s Story: Learning to B myself, a story about the challenges of occupational stress, gender identity, mental health, and transgender advocacy from a rural context.

Jeraldine’s Story: There is Hope, a story of the experiences of an Indigenous woman who experiences the ramifications of intergenerational trauma. This story advocated for Canada to provide culturally appropriate healthcare to indigenous populations.

Although produced by a health care system, these videos give more voice to patients and family members than is often the case with these kinds of collections. They are well-produced and many address the experiences of historically under-served and marginalized populations.