Access Intimacy, Interdependence and Disability Justice

Access Intimacy, Interdependence and Disability Justice

Text of Mia Mingus presenting at the 2017 Paul K. Longmore Lecture on Disability Studies at San Francisco State University, with a link to the video, posted to YouTube. Mingus is a queer physically disabled Korean transracial and transnational adoptee, who is a writer and educator of disability justice. The lecture focuses on disability scholarship with personal stories woven throughout used as persuasive appeal. She stresses that disabled people, including disabled queer individuals of color, are often overlooked in social justice movements and communities, and emphasizes the importance of including their experiences and stories. The main focus of this talk is the idea of “access intimacy,” which is a term she coined that refers to a deep, often unspoken connection between individuals who understand and accommodate each other's access needs, in the context of disability. It's the feeling of comfort and understanding when someone "gets" your access needs, making it easier for disabled people to navigate their daily lives. Access intimacy can exist with other disabled people, family members, or complete strangers, and can be as small as a knowing look and intangible as a feeling of familiarity. Nevertheless, Mingus describes how access intimacy is a powerful tool for liberation and a way to reframe the understanding of disability. Mingus argues that access should be used to challenge ableism and able-bodied supremacy and encourages shifting the responsibility for access from individual to collective responsibility. This talk could be used to bring up discussions about disability and ableism, disability justice, interdependence, cultural competence and intersectionality, and patient-centered care.

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Autism and Neurodiversity: Different Does Not Mean Broken.

Autism and Neurodiversity: Different Does Not Mean Broken.

In this TedTalk, Adriana White (librarian, former special education teacher, and author) discusses the idea of neurodiversity. She was diagnosed with autism and anxiety in her 30's and now advocates for inclusive schools and libraries.  Her talk includes stories of her own autistic experiences, including how others labeled and made fun of because of the way her brain works. This video could be utilized as a tool to investigate how medical diagnoses elicit certain stereotypes and biases, such as being denoted as a “weird” kid.  Additionally it could be used as a way to create dialogue surrounding the cultural and societal norms that surround the ideas of being “normal” as well as raising questions about accommodations in the built environment and the social model of disability.

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Honoring the Stories of Illness

Honoring the Stories of Illness

In this TedX presentation in Atlanta, Dr. Charon describes her practice of narrative medicine and the connections between close reading of a text and paying close attention to what her patients tell her in clinical practice. She describes how she interacts with patients and receives their stories and the ways in which this builds an affilitation that is the foundation for care. I have assigned this video as an introduction to narrative medicine (often in conjunction with one or more readings by Charon about narrative medicine). The video is 18 minutes long so it can also be shown in class to provide a shared reference for discussion.

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To understand autism, don’t look away

To understand autism, don’t look away

Carina Morillo shares her story as the mother of a son with autism through a TedTalk. The video is in Spanish with English subtitles; a transcript in English and Spanish is available as well. Morillo's 15 year old son, Ivan, was diagnosed when he was two and a half and at that time, his parents did not have access to internet information or expert advice about autism. Morillo describes how she learned to connect with her son through activities he enjoyed and how she learned to appreciate and build upon his strengths, such as a strong visual memory, which became a basis for his communication through images. She describes support from a local grocer who gave her son a job that utilizes his passion for organizing items. Her message is that one does not need to be an expert to be curious and inclusive. Eye contact is a part of the story and a metaphor for inclusion; some autistics might point out that insisting on eye contact can be distracting, even painful. However, the larger point of the story emphasizes valuing autistic abilities and working with their interests to create connection. This story can prompt a discussion that may challenge stereotypes about autism and expert systems of medicalization and treatment.

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