survivor’s guilt – Health Story Hub

Jessica’s story: “It isn’t just dementia that’s a terminal diagnosis – life is”

Jessica delves into her experience grappling with the possibility of inheriting familial Alzheimer’s disease, a rare, inherited form of the condition. Jessica shares her decision-making process, including participation in observational research, contemplating genetic testing, and the emotional impact of receiving the test results. The story not only highlights the unique challenges faced by individuals with a genetic predisposition to dementia but also sheds light on the complex ethical and emotional considerations surrounding genetic testing. Jessica learns she does not carry the gene, leading to a mix of relief and survivor’s guilt. The narrative concludes with an insightful reflection on the importance of embracing life regardless of a terminal diagnosis and offers support to those facing similar decisions.

Students can analyze the emotional, ethical, and practical dimensions of genetic testing, exploring the author’s motivations, challenges, and the aftermath of receiving the results. The story prompts discussions on the broader implications of genetic testing, including family dynamics, reproductive choices, and coping with survivor’s guilt.

Mackenzie: My Faulty Gene

This narrative tells the story of Mackenzie, who, from a young age, was actively involved in raising awareness and support for Huntington’s Disease (HD) due to its prevalence in their family. Mackenzie’s mother, grandfather, and aunt had all been affected by HD, prompting a personal decision to undergo predictive genetic testing at the age of 18. Contrary to expectations, Mackenzie tests negative for the HD gene, leading to a profound shift in life plans and a reevaluation of personal goals. The narrative explores the complex emotional aftermath, including feelings of being lost and survivor’s guilt. Despite the challenges, Mackenzie discovers a renewed purpose in advocating for the HD community and gratitude in the knowledge gained through genetic testing.

Students can analyze the challenges and opportunities presented by genetic testing, exploring the impact of results on personal identity, life goals, and community engagement. The narrative also raises important ethical considerations surrounding predictive testing and the potential psychological effects on patients.