Tag: open access

Neurodivergent Narratives

Sandra Coral is a student, teacher, writer, podcaster, and learner all about neurodivergence. They have multiple social media sites (instagram, twitter, Facebook) that are publically accessible and focus on promoting education and awareness about neurodivergence. She is autistic and has ADHD and shares her own experiences via through written posts, videos, and podcasts on topics such as sensory processing, fitting in, masking, and burnout. Sandras’s sites could be utilized in a classroom setting as narratives from someone who is neurodivergent told in their own voice. The link below is to the Facebook page, where the About profile provides links to other platforms. Her social media posts are useful not only for discussing neurodivergent narratives, but also for reflecting on what constitutes a narrative (small individual posts retelling everyday life? the accumulation of posts over time?). In contrast, her Substack includes longer posts that more clearly resemble stories.

Mental health Poems for Teens

The Poets.Org website of the Academy of American Poets has curated this collection of 14 poems related to mental health that were selected for teen readers (part of a series of “Poetry for Teens” on various topics). Some themes throughout the poetry are depression, anxiety, as well as hope and resilience. Each poem includes a description of some of the themes within it as well as details about the author. The pieces span a range of time periods and a variety of authors with different backgrounds including, for example, Emily Dickinson and Sylvia Plath, as well as Naomi Shihab Nye and Ada Limón.

Community Conversations – Epiphany’s Story

In this short video posted by the Medical College of Wisconsin, Epiphany Gold, shares her experience with depression. As the pandemic started, Epiphany struggled with her mental health due to the isolation, losing her mom, and failing her nursing exams, something that had been an anchor for her. Epiphany shares how she no longer felt like she could continue to go on, not even for her child which was the sign that she needed to go therapy. She reflects how she feels therapy saved her as well as her life. This video engages with the topic of what it means to be in relation to others, specifically your child, while struggling with mental health. This video could be used to explore ways in which systems, or the lack thereof, of social support aid in the general well being of people, especially in regard to mental health.

Personal Stories of Mental Health

Black Dog Institute is a nonprofit organization dedicated to medical research related to mental health. This online collection houses 18 different stories related to mental health (including bipolar disorder, PTSD, anxiety, depression), each representing the lived experiences of those who wrote them. Each story has a short description. A majority of the stories are from patient perspectives while some of them are based around a provider narrative. Since the themes throughout the stories vary so much, this site could be utilized in any syllabus focused on mental health. Such stories show the personalizing of diagnoses as well as show variability in how they are experienced, which can help to expand the general notions and stereotypes that are held around mental health

States of Grace

The film States of Grace intimately captures the profound transformation of a revered physician and her family in the wake of a life-changing accident. Dr. Grace Dammann, a pioneering AIDS specialist and devout Buddhist who was honored by the Dalai Lama, was driving across the Golden Gate Bridge on her routine commute when another driver crashed head on into her car. After seven weeks in a coma and a dozen surgeries, Grace miraculously awoke with her cognitive abilities intact, though her body was left shattered. States of Grace follows her return home to where her partner Nancy “Fu” Schroeder becomes Grace’s primary caregiver, while also caring for their teenage daughter Sabrina, who was born with cerebral palsy. Grace, meanwhile, must reconcile her joy at still being alive with the frustration of being so dependent on others. Through verité footage and interviews with doctors, family, and friends, the film paints an inspiring portrait of devotion and trust as it delicately documents one woman’s fight to reinvent herself.

Through Grace and Fu’s story, this film explores many aspects of health studies, including the shift from provider to patient, role redefinition when a family member becomes a primary caregiver, the role that spirituality can play in healing, parenthood, and more.

Caring for a Parent in my Home

This article describes Beth’s caregiving story as she cares for her elderly mother post-stroke. Beth’s journey captures the complexities, sacrifices, and resilience inherent in caregiving roles. The narrative explores familial dynamics, emotional strains, and the importance of planning and seeking external support. Beth’s evolving experience offers valuable lessons for educators seeking to illustrate the intersection of health, family dynamics, and personal well-being in caregiving narratives. Caregiver.com aims to provide community and support for nontraditional caregivers, such as children caring for their aging parents. As such, the story emphasizes the significance of communication, planning, and self-care.

Acupuncture: Susan’s Story – University Hospitals

This minute and a half long youtube video from University Hospitals Connor Integrative Health Network tells Susan’s story, who had severe back pain from a bulging disc that severely limited her mobility. After her regular physical therapy only provided limited relief, she decided to seek out a more holistic treatment and use acupuncture along with her regular treatment. Susan, and her naturopath Lina Sbrocco, explain how acupuncture has allowed Susan to return to her daily life activities by greatly decreasing her pain. The video shows what the treatment looks like in order to demystify acupuncture, but also frames it as a last resort, and complementary to biomedicine rather than as an alternative.

Using this video in class provides a practical example of a short narrative that could stimulate discussions on complementary and alternative medicine and holistic health, as well as how medical facilities advertise using patient testimonials. The video advertises acupuncture as something that University Hospitals offers, and uses Susan’s success story to encourage patients to use their medical services.

Music Therapy in Larry’s Life

This five minute video from AMTA music therapy shares Larry’s story, a musician, teacher, father, and husband who lost many functions following a seizure. The video contains an interview with his wife, and board certified music therapist Moreen Bosch, to show how music has helped Larry regain his self-confidence and joy in music. This video could be used to examine the role of arts, specifically music therapy, in the healing process.

Living with HIV: Six Very Different Stories

This article from The Guardian features six diverse narratives of individuals living with HIV, highlighting the evolution of the HIV/AIDS experience over the past 30 years in Britain. For example, Jonathan, diagnosed during the early epidemic in the 1980s, reflects on living with HIV for over half of his life, explaining how he managed without medication until 1996 and has come to embrace life with HIV through activism. Another example is Jo, diagnosed at 60, who discusses how she navigated the shock of her diagnosis and the perceptions associated with being an older woman with HIV. She’s open about her diagnosis because she wants to change perceptions about people living with HIV.

This article offers students an opportunity to reflect on diverse experiences with the same illness, and brings up topics such as stigma, activism, and media representation of illness and how these change through time.

No One Left to Save

Rachel Berlin recounts her experiences as a third year medical student on an internal medicine clerkship and the relationship she had with the senior resident who supervised her work, Hassan. The story touches on several themes, including the process of developing competence in diagnosis through practice with patients and interaction with a mentor, and the emotional work of learning to treat patients in a system in which you aren’t always around to learn the outcome of care and in which you don’t always have time to respond as you might wish to patients who face serious diagnoses or who are dying. An element of the story also concerns Hassan’s status as an immigrant far away from his family in an unnamed war-torn country, repeating his residency in order to qualify for a US medical license.

In my course on the role of narrative in medical practice, I teach a week on how medical students are socialized to become physicians and the role of storytelling in medical practice and socialization to medical practice. This brief personal story would be a useful companion piece to some of the anthropological research I teach.