Health Story Hub
8 page graphic narrative structured around a conversation between a Japanese American college student and her grandmother. Each page is a collage of images, text and drawings, allowing for both discussion of the issues (aging, intergenerational relationships, queer identities) and the techniques and
This graphic memoir captures the author’s journey with her mother, Alice, who is diagnosed with dementia. Through a creative blend of writing, visual art, and comics, Walrath weaves elements from Lewis Carroll’s Alice’s Adventures in Wonderland throughout the text to explore the transformative power of storytelling in navigating the challenges of mental illness, loss, and social stigma. The memoir offers a unique perspective on aging and caregiving, emphasizing the healing potential of graphic narratives by speaking to how visual mediums can communicate more than, or differently from, written text. Collaged illustrations, made in part from Carroll’s text itself, are accompanied by a textual vignette. The combination of text and art results in a cohesive narrative that would lack the same depth and detail if considered in isolation. Graphic medicine, Walrath writes, “lets us better understand those who are hurting, feel their stories, and redraw and renegotiate those social boundaries.” Aliceheimer’s provides a way to introduce and educate people about Alzheimer’s as a medical condition, while highlighting the humanity involved in dealing with it as a family.
This novel could be used in classes regarding narrative medicine, graphic medicine, and/or caregiving experiences. It invites discussions on the role of storytelling in reshaping medical narratives, the impact of stigma on health, and the potential for creative expression in coping with complex health challenges. With Walrath’s background in Medical Anthropology, this book could also be used to ask how researchers personally connect to their work.
This article describes Beth’s caregiving story as she cares for her elderly mother post-stroke. Beth’s journey captures the complexities, sacrifices, and resilience inherent in caregiving roles. The narrative explores familial dynamics, emotional strains, and the importance of planning and seeking external support. Beth’s evolving experience offers valuable lessons for educators seeking to illustrate the intersection of health, family dynamics, and personal well-being in caregiving narratives. Caregiver.com aims to provide community and support for nontraditional caregivers, such as children caring for their aging parents. As such, the story emphasizes the significance of communication, planning, and self-care.
The Family Caregiver Alliance’s Caregiver Stories web page is a collection of personal narratives that shed light on the diverse experiences of individuals providing care to their loved ones. These stories capture the challenges, triumphs, and emotional journeys of caregiving across different situations and relationships. From spouses caring for partners with chronic illnesses to adult children looking after aging parents, each story offers a glimpse into the unique and often complex dynamics of being a caregiver. The narratives serve not only as a source of inspiration and empathy for those who might not be caregivers but also as a valuable resource for individuals seeking connection and understanding in their own caregiving journeys. This webpage addresses all different types of illnesses and caregiving dynamics including Alzheimer’s, diabetes, cancer, autism, and so much more.
One story provided is from two parents’ perspectives of caring for their daughter with complicated type one diabetes. Britani was a once-healthy young woman who, at 22, developed type 1 diabetes. Over the years since then, her health deteriorated, leading to unexplained and debilitating symptoms. Despite numerous visits to various medical institutions, their family was left without a clear diagnosis, and Britani’s condition continues to worsen. This narrative portrays the immense challenges faced by Britani’s caregivers, her parents, who juggle the responsibilities of caring for her while trying to maintain a life outside her health concerns. The toll on both Britani and her caregivers is evident, with hospitalizations, experimental treatments, and the constant struggle against physical and emotional pain. The story also touches on the financial strain, as the caregivers cannot afford to stay home full time and must continue working. Despite the hardships, their new granddaughter brings joy to their lives, too. Throughout peritoneal dialysis insulin shots, bathing, trouble sleeping, and more, Britani remains remarkably strong, facing each day with minimal complaints despite the unimaginable pain she endures. The caregivers express a deep love and willingness to sacrifice for Britani, highlighting the profound impact of chronic illness on both the patient and those who care for them.
Another story example is that of Lisa and her husband Richard. Their life, initially filled with love, family, and what Lisa describes as “vibrant Italian passion,” took a drastic turn in 1998 when Richard’s behavior and health began to change. Despite numerous attempts to find a diagnosis and solution, it wasn’t until a CT scan revealed the extent of Richard’s condition—his brain was shrinking, and a large mass was present. The couple faced the harsh reality of Early-Onset Alzheimer’s, and began attending classes and finding support from the Family Caregiver Alliance. The challenges escalated when their home caught fire, leading to the heartbreaking decision to place Richard in a facility dedicated to Alzheimer’s care. Lisa’s account is a raw and emotional portrayal of the toll this devastating disease took on their relationship and family. Richard’s passing eight months later left a profound void, and Lisa, in coping with overwhelming grief, turned to cooking as a form of self-care. Her book, “Good Grief Cooking,” is a resource she provides for those facing similar loss. Through her story, Lisa emphasizes the importance of seeking support, sharing experiences with other caregivers, and finding ways to navigate the complexities of grief.
The stories provided in the Caregiver Stories are a great resource for those who are currently caregivers to their loved ones, either looking to
share their stories or hear stories from others. This website could be used in a classroom setting for students in healthcare looking to understand how to support and understand not just their patients, but the other people taking care of them.
In this article, a 65 year old writer discusses her experience of publishing a debut novel amidst a youth obsessed industry saturated by social media trends and an increasingly online market. DeBare shares her thoughts on the recent skyrocketing of the term “debut” to describe novels, and how it has different implications for someone at the beginning of their career vs someone retired. She grapples with imposter syndrome and looming mortality, and shares lessons she has learned from the blindly hopeful dreams of her youth clashing with sobering reality. Finally, she offers an inspiring, accessible vision of writers that breaks free of the glamorized 30 Under 30 stereotype. This article would be useful as discussion material in a creative writing class, particularly for older adults. Outside of its specificity to novelists, this could be helpful in a sociologically focused class or any class that deals with public perceptions of age and ageism. It could be used as part of a larger unit on the way aging is viewed in a variety of professions. It might even be helpful for premed students who are looking to work in fields where they will have primarily older patients to gain empathy and understanding of the different life paths of their patients.
This short story follows a teenager straddling the precarious line between adolescence and adulthood, Mike, as he visits his grandmother in an assisted living facility. He discovers that she thinks he is her late husband when she tries desperately to get him to forgive her for a past wrong, while Mike is bewildered at such a raw view of someone he previously only thought of as a distant relation, not her own person. This would be useful for a class discussion on dementia and its effects on family members, as well as the residential care industry itself. It might be a particularly important resource for training healthcare workers to work with the elderly in these kinds of facilities to better understand nuanced experiences of both those who live there and those who visit. Courses on aging more generally could also easily incorporate this as a prompt for discussion or writing reflections.
In this article, a writer and English professor reviews various graphic narrative depictions of aging including Joyce Farmer’s Special Exits, Roz Chast’s Can’t We Talk about Something More Pleasant?, and most prominently Nigel Baines’ Afloat: A Memoir about Mum, Dementia, and Trying Not to Drown. Venema summarizes each of these books’ plotlines and connections to their authors own lives, specifically as retellings of their parents’ experiences. She also explores the benefits of using comics and graphic narratives to tell end-of-life stories in complex, unconventional, temporally warped, and often nonlinear formats. Each of these books could be used as resources in class syllabi on aging, healthcare systems, and care from family and friend support systems, but this comprehensive review could be a useful introductory material for a graphic medicine course.
Daughter describes the stress of caring for her aging parent from geographically distant place. Details many issues that created burnout in her caregiver role, including feeling isolated and embarrassed about her struggle until she found out all of the problems she faced were very common for caregivers in her position. Useful to discuss how difficult it is to care for elderly parents, especially from a distance, and caregiver burnout.
Poems from Life with Juniper Village is a project developed in partnership between the Pennsylvania Center for the Book and Juniper Village Senior Living at Brookline. The goal is to share and celebrate the lives of Juniper residents with original, individualized poems presented by local poets. The website for the Senior Living community can be found here: https://junipercommunities.com/community/brookline-senior-living/ This 2022 site is the third year of the project, which is described here: https://crdpala.org/2019/03/20/poems-from-life-with-juniper-village-literature-links-communities/
The project illustrates the power of poetry as a form of narrative for honoring life experience and promoting well-being. It is also an illustration of a community-based project that utilizes narrative arts to celebrate community and seniors.