El camino hacia la audición de Mariángeles

El camino hacia la audición de Mariángeles

Content type: Health story

The link takes you to a website in Spanish that gives detailed information about cochlear implants. One section labeled “Historias de Usuarios” has several stories from people who have successful experiences with the devices. One example: Mariángeles, an Argentinian woman, feels “reborn” after cochlear implant surgery and returns to study at the university. She says that now that she has her “ears” and her son is an adult, she can fully focus on herself again.

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¡Por favor, déjame lavar y aspirar más!

¡Por favor, déjame lavar y aspirar más!

Content type: Health story

Sam narrates the impact of his pseudoxanthoma elasticum (PXE) through his chores around the house. After a discussion with his wife, Anna, about how to fairly split up these duties while his vision progressively worsens, Sam takes up cooking. Chores used to be tedious, but now he admits he finds peace in being able to perform actions like vacuuming and making the bed. Most importantly, he discovers that he and Anna share these out of the love they have for each other. Pseudoxanthoma elasticum is a hereditary disease that calcifies elastic fibers, mainly connective tissue. A case study about this disease could be supplemented with this article in medical school. Focus on relational issues would appeal to an undergraduate class. 20 minute read for advanced Spanish learners.

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To understand autism, don’t look away

To understand autism, don’t look away

Content type: Health story

Carina Morillo shares her story as the mother of a son with autism through a TedTalk. The video is in Spanish with English subtitles; a transcript in English and Spanish is available as well. Morillo’s 15 year old son, Ivan, was diagnosed when he was two and a half and at that time, his parents did not have access to internet information or expert advice about autism. Morillo describes how she learned to connect with her son through activities he enjoyed and how she learned to appreciate and build upon his strengths, such as a strong visual memory, which became a basis for his communication through images. She describes support from a local grocer who gave her son a job that utilizes his passion for organizing items. Her message is that one does not need to be an expert to be curious and inclusive.

Eye contact is a part of the story and a metaphor for inclusion; some autistics might point out that insisting on eye contact can be distracting, even painful. However, the larger point of the story emphasizes valuing autistic abilities and working with their interests to create connection. This story can prompt a discussion that may challenge stereotypes about autism and expert systems of medicalization and treatment.

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2020 was One of the Best Years of My Life

2020 was One of the Best Years of My Life

Content type: Health story

Inêz Mália Sarmento is disabled autistic author who describes how her experience during the pandemic included growth and development. “It helped me understand even more that the world was ready, it just wasn’t using its resources the right way, meaning, the world could be accessible for everyone if we wanted it to be. That made me feel a bit resentful. But it also gave me the fuel I needed to keep pushing against the grain.” As a result of this access, she finished high school, began college, and made friends. She questions “going back to normal” and reducing these services.

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