Body of Work

Body of Work

Anna Dovre's story "Body of Work" is a meditation on the various ways she has encountered death through her medical education: learning to intubate on a cadaver, witnessing death in the emergency department, sitting with a hospice patient.  Her essay reflects on the ways death is experienced and understood in the process of medical education and the connections and disconnections with one's own understanding of mortality. She starts her reflection with a description of her practice time in a cadaver lab and the physical benchmarks for competency when performing an autopsy. The following section about her time as a hospice companion juxtaposes personal experience with a discussion of clinical terms for ways and stages of dying.  "To die actively means the pauses between breaths lengthen and stutter; the mind slips into unconsciousness; the skin begins to mottle into starbursts of purple and blue. To die inactively—well, that becomes a question of semantics, of philosophy." The story raises questions about how we honor life and make one's last moments and after death a respectful and respected process. How can we, as the living, be more appreciative of the gift of life while caring for those around us? This quotation, "If anything, the scene on the table has become more gruesome, but perhaps that has rendered her less real, less human to me," from after the autopsy is a stark realization that will inspire feelings and emotions in readers.

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Wake Up

Wake Up

This song expresses the desire to discover that a diagnosis of cancer is not real, to "wake up" from the experience and emotions of approaching and fighting illness to discover it's been a nightmare, rather than one's new reality.  The song is from the musical, Club Meds, which tells the stories of three people affected by cancer and by each other. Songs can be powerful tools for teaching by providing emotional resonance, perspective, and connection to a topic that can otherwise feel isolating or clinical. Lyrical stories engage emotions in ways that data or factual information alone often cannot. In "Wake Up," pace, rhythm, and repetition convey feelings of wanting to deny or resist a diagnosis yet being forced to come to terms with it. Stories of illness told in song can also allow individuals to connect with themes of mortality and end-of-life on a personal level, creating empathy for the fear or stigma associated with these topics. This can be especially beneficial in communities where discussing mortality is a cultural taboo. Mortality-themed lyrical stories can normalize discussions around death and dying. In a community setting, they can facilitate support groups or workshops where people feel safe to discuss these topics openly. In clinics, they can make patients and families feel more comfortable asking questions or expressing concerns about end-of-life care options. For both patients and families, lyrical stories about mortality can provide solace and a way to process grief. They serve as a form of art therapy, encouraging reflection and emotional release, which can be healing during or after the grieving process.

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The Desperate Son

The Desperate Son

Witnessing his father's decline from cancer, an oncologist wrestles with his own fears and desperation. The story illustrates what happens when roles are flipped and a health professional finds himself at the centre of a family health crisis.  What would you, as a health professional, do when faced with a similar situation? The story could be used to promt discussion about care at end of life and provider-patient communication.

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Amid the Wait

Amid the Wait

This personal essay, appearing in JAMA's regular "A Piece of My Mind" feature, details a health care provider Cia Merin Bishop's experience of going through unsuccessful infertility treatment while practicing medicine and caring for patients in a pediatric intensive care unit.  The essay poignantly portrays the emotional experience of undergoing infertility treatment. It also speaks to what it is like to be both physician and patient and the coping, support, and resilience she marshalls in order to continue to function at work while dealing with the physical and emotional impact of her own medical treatment.  The author points out that this experience is not uncommon, citing studies that suggest about a quarter of female physicians experience infertility and 31% of female oncologists reported infertility requiring counseling or treatment. As she says, "I write this piece in solidarity with other women physicians. I write this piece as an anthem of our strength. And I write this piece to acknowledge the suffering within us, as we tend to the suffering around us." The dual focus of this moving and readable essay would make it equally useful for discussions of infertility and reproductive health as well as physician stress and resilience.  It could also be a useful in a course or unit on narrative medicine as an example of how physician's writing their own stories helps to humanize medicine.

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Together Well: Documenting COVID’s Impact through Storytelling

Together Well: Documenting COVID’s Impact through Storytelling

Together Well is an online collection of stories (some audio and written but most video) about experiences of COVID.  This collaboration between the Relational Leadership Institute (www.relatelab.org) and the Northwest Narrative Medicine Collaborative (nwnmcollaborative.org) was designed to "collectively make sense of the pandemic’s impact on all members of the community: nurses, social workers, patients, family members, doctors, caregivers, students, chaplains, scholars, educators, activists, and artists." In addition, the stories were assembled in the hope that reflecting on pandemic experiences can provide a basis for change in healthcare and communities that "better center connection, relationships, and well-being."  Stories document not only hardship but also ways that the COVID crisis led teams, communities, and individuals to  innovate, collaborate, and change in powerful ways that we may wish to continue as we move forward. The 37 stories in the collection are listed on the webpage; each has a thumbnail and an image.  There is also a video (the first entry in the collection) about the project.  Stories are brief enough to show in a class or workshop.  The videos are hosted on YouTube so it is possible to provide closed captioning and transcripts are also available.

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Bibliography: Patient-provider communication stories

Bibliography: Patient-provider communication stories

A student got interested in patient-provider communication in a part of a course devoted to health narratives. I pulled this together for them as a starting place for them to look further.

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Skin & Bones

Skin & Bones

Skin & Bones is Renée Watson’s novel about the experiences of Lena, a 40-year-old African American woman in predominantly white Portland, Oregon.  Health, body image, weight, diet, and beauty standards are prominent topics throughout the book and these are contextualized within larger themes about race, gender, gentrification, work, love, faith, and friendship.  There are many passages in the book that show how beliefs about health are communicated through interactions with Lena’s friends, family, romantic partners, co-workers, and service providers. For example, the book opens with a chapter entitled, “the weight I carry,” that problematizes assumptions about health and weight in an interaction with a healthcare provider. Lena’s observations about the interaction (e.g., the too-small gown, unfounded assumptions and problematic statements from the health care provider) are woven with reflections on her lifeworld.  Immediately following this chapter is a brief reflection on “morbid” as a word used in relation to weight; it concludes with the statements, “Comment on my appearance. But tell yourself it’s about my health.” Health-related themes are prominent enough that one might assign the entire book and this would provide opportunities to see "big" or "fat" as an identity that intersects with race and gender and to discuss health themes in relation to sex, social support, family, and community.  However, the book is also written in chapters (some only a paragraph long) that could be excerpted to explore specific topics.  For example:
  • the aforementioned “the weight I carry” and “morbid” focus on a health care interaction
  • “Sunday supper” includes a reference to a mother who died from a failure to diagnose breast cancer because she was “a poor Black woman”
  • “shopping while fat” and “back to school shopping” address finding plus-sized clothing
  • “macro microaggressions” details lunch with younger white co-workers and concludes with the line, “...they sat there and basically admitted—in my presence—that of all the cares and worries to have in life, their greatest fear is having a body that looks like mine.”
  • “aunt Aretha” examines “soul food” and its complicated connections to health, family, race, and class
  • A sequence of chapters--“fat girl, dance,” “how whiteness killed the body positive movement” (an excerpt from Kelsey Miller), “debriefing,” “positivity,” “positive,” and “body positivy” address how fat acceptance intersects with race and this is taken up later in two chapters describing Lena and her friends’ experience at a “Fat Girl Wellness Conference”
One especially powerful recurring storyline involves messages about self-acceptance, health, and diet that Lena received from her own mother and what she communicates with her daughter. These are difficult chapters and include a near overdose on diet pills that is initially taken as a suicide attempt. A strong bond between Lena, her mother, and her daughter sustains them and the book addresses the complexities of communicating about health, race, gender, and beauty in our personal relationships.

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‘Oppenheimer’, mi tío y los secretos que a EE.UU. aún no le gusta contar

‘Oppenheimer’, mi tío y los secretos que a EE.UU. aún no le gusta contar

The film "Oppenheimer.” which won seven Academy Awards shows both the  triumph of scientific ingenuity and is  a cautionary tale of unintended consequences.This opinion essay describes reckless exposure of Americans to radiation during the atomic tests that created the bomb. Soldiers, pilots, and sailors - and a military band, the leader of which is the focus of this story - were exposed to high levels of radiation that caused serious illnesses and cancer later in life. They were forbidden to disclose their participation in the nuclear testing, even to spouses and doctors, for decades, making it difficult to trace exactly what impact the exposure had on their health. 5 pps, upper intermediate readers; good for discussion of environmental health issues.

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LitMed: Literature Arts Medicine Database

LitMed: Literature Arts Medicine Database

Scholars, educators, patients, students, and anyone interested in medical humanities can search this site for annotated entries that describe works of literature, fine art, visual art and performing art related to medicine. Housed at the NYU School of Medicine, the annotations are written by an editoral board of medical humanities scholars from across North America. Users of the site can search by words or phrases of their own, peruse an alphabetical index of titles, or use the extensive system of tags.  It is possible to narrow a search to a particular kind of work (e.g., "All visual arts" or just photography, painting/drawing, or sculpture) or to medical humanities topics (e.g., history of medicine, medical anthropology, science and medicine).  Stories by "physician" or "nurse" can also be searched.  The site has over 3000 items at the time of this submission. An entry includes a summary description of the work as well as a commentary.  

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The ones we sent away

The ones we sent away

The author found out at age 12 that her mother had a sister who was institutionalized before age 2 with intellectual disabilities that left her unable to speak. She traces her aunt's life through various institutions, most of them deplorable, and hears her mother's grief over the separation from her only sibling. She contrasts the attitudes and treatment of such disabilities in the 1950's through the 1980's with much more open acceptance and inclusion of nonverbal persons in the 2020's, based on a photo that went viral on Twitter. Detailed memoir of three generations' relationships with the sister: the author's grandmother, her mother, and herself. Traces the evolution of attitudes toward intellectual disabilities in the 20th and 21st centuries from close relationship to the issue, noting that children born today with her aunt's condition are able to live much fuller lives because of greater inclusion in educational, social and family contexts. Includes many links to relevant sources, from memoir to scientific works. About 15 pages; also has audio version.

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