2020 was One of the Best Years of My Life

2020 was One of the Best Years of My Life

Inêz Mália Sarmento is disabled autistic author who describes how her experience during the pandemic included growth and development. "It helped me understand even more that the world was ready, it just wasn't using its resources the right way, meaning, the world could be accessible for everyone if we wanted it to be. That made me feel a bit resentful. But it also gave me the fuel I needed to keep pushing against the grain." As a result of this access, she finished high school, began college, and made friends. She questions "going back to normal" and reducing these services.

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Me and Mrs. Dalloway: On Losing my Mother to COVID-19

Me and Mrs. Dalloway: On Losing my Mother to COVID-19

Spitzer describes caring at a distance for her mother and father with COVID. Her mother dies, and Spitzer (a literary scholar) explains how Virginia Woolf's To the Lighthouse (a book that helped Woolfe come to grips with her own mother's death) takes on new meaning as Spitzer grieves her mother. She explains, "Reading and interpretation are how I deal with overbearing emotion, and they are also the way I am working through this grief and making it mine." She asks, "How to square the collective grief of COVID with the solitary grief of a mother's death and a father's illness?" and here, too, she finds insight in Woolfe's work, Mrs. Dalloway. The essay's concluding section describes interactions in her neighborhood and the process of grieving during social isolation. The essay could be used to discuss different ways of dealing with grief, and some of the common and distinctive features of COVID-related grief. It also points out the value of literature and personal stories in grieving processes.

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On Witness and Respair: A Personal Tragedy Followed by a Pandemic

On Witness and Respair: A Personal Tragedy Followed by a Pandemic

Ward describes losing her 33-year old husband in the early days of COVID when transmission wasn't well understood and treatments were non-existent. The essay opens with a loving tribute to his individual attributes, a useful move to personalize the statistics on COVID deaths. She puts her loss in conversation with the plot of a novel she is writing about an enslaved woman who loses family and with protests in response to the murder of George Floyd. The short essay is accompanied by a 14:27 minute audio reading. This essay could be used in a course to prompt discussion about health disparities in COVID and the connection between those and a larger history of systemic racism. It also gives insight into grief and loss, both individual and communal, and the ways in which story is a way of processing and acting upon it.

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A last act of intimate kindness

A last act of intimate kindness

"I had barely seen my brother in decades, but when time was short, he let me in." In the "Modern Love" section of the NYT, a woman describes the tenderness and connection of caring for a younger brother she was mostly estranged from through his death from cancer. She's surprised at how positive and touching it is to reconnect with him under such difficult circumstances. The story could be used to prompt discussion of end-of-life care. The brother declines aggressive treatment and his sister is with him when he dies at home. This narrative is also available in Spanish under the title, "Un último acto de amabilidad íntima."

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Survivor of White House Lightning Strike Embraces third chance at life

Survivor of White House Lightning Strike Embraces third chance at life

A graduate student canvassing near the White House on 8/4/22 for a nonprofit humanitarian group (International Rescue Committee - aids people in disaster zones) was one of four people hit by a lightning strike in Lafayette Park. She was the only one to survive, despite her heart stopping twice, the second time for more than 10 minutes. She ponders the meaning of being the one to survive the experience and describes the horrible pain from burns and nerve damage that she's still suffering from. Focuses on gratitude, learned from her aunt and uncle who died of cancer years ago but were grateful to be alive up until the end.

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The Hidden Dying of Doctors: What the Humanities Can Teach Medicine and Why We All Need Medicine to Learn It

The Hidden Dying of Doctors: What the Humanities Can Teach Medicine and Why We All Need Medicine to Learn It

This review of Kalanithi's "When breath becomes air" focuses most on the opening story of a young colleague who took his own life, the problem of medical student and physician suicide/ depression/burnout, and how humanities education could alleviate the suffering of doctors by connecting them with the human side of medicine, their own and that of patients. This is very useful as a first-week reading in a Foundations of Health Humanities course or as a reference for a talk to aspiring med students

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Letting go: What should medicine do when it can’t save your life?

Letting go: What should medicine do when it can’t save your life?

Tells several of the wrenching stories from his book (Being Mortal), making points about medicine's reluctance to stop treatment and acknowledge the patient is dying, even when the chance of improvement is slim to none. "Modern medicine is good at staving off death with aggressive interventions--and bad at knowing when to focus, instead, on improving the days that terminal patients have left." 13 pps; suitable for undergrads, professional students, maybe medical students; describes hospice treatments and misconceptions about hospice.

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To be a good doctor, study the humanities

To be a good doctor, study the humanities

The author makes the case for why the study of humanities is necessary for a complete medical education. Humanistic study helps to answer questions that are essential to being a "good" doctor, such as "how best to support a patient who is dying. Do you cry with the patient? Is it acceptable to be detached? Is it OK to resume your life and laugh a few hours later?" Humanistic study also helps physicians appreciate social determinants of health. The article also provides statistics on medical humanities programs, med school acceptance rates for students with humanities background, correlations between humanities background and positive and negative physician attributes, and patterns of residency choices. The essay could be used as an introductory reading in a medical humanities course.

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Think you want to die at home? You might want to think twice about that.

Think you want to die at home? You might want to think twice about that.

This graphic medicine opinion piece by a professor of medicine and palliative care complicates the belief that a death at home is less expensive or more satisfying than death in a hospital. The author recounts conversations he has had with home caregivers about the burdens of complicated care regimes; the physical, psychological, and economic costs, and the systemic incentives to shift care to home caregivers who may be ill-equipped. This short piece is useful for discussions about end of life care, both the personal burden for caregivers as well as the systemic and economic incentives. It includes brief quotations from caregivers the author has worked with as well as statistics about end of life care in the US.

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The cookie jar

The cookie jar

A rare Stephen King short story that's both publicly available in a literature magazine and on point for a health narratives course. It has the SK mark of supernatural weirdness/ unexplainability and also nicely profound messages about why human beings turn down unlimited good things - like fresh baked cookies - in favor of something horrible, like war. Mental health struggles become a superpower and there's symbolism to keep a literature class well engaged for a class period.

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