This article documents the central role of patient narratives in establishing “long haul COVID” as a phenomenon. The article explores how case studies, Tweets with a shared hash tag, and high profile news stories of individual patient experiences challenged conventional medical wisdom during the early period of COVID. The article also acknowledges that power differences in whose stories receive attention played a role in “long haul” being accepted. This is a brief article that could be assigned in conjunction with first-person narratives to explore how patient narratives are related to accepted medical knowledge, research agendas, and public health communication.
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Details
Language: English
Type of Story: Journal Article
Medium: written
Contributed by: Health Story Hub Team ( health-storyhub@uiowa.edu )
Citation:
Callard, F., & Perego, E. (2021). How and Why Patients Made Long Covid. Social Science & Medicine, 268, 113426. https://doi.org/https://doi.org/10.1016/j.socscimed.2020.113426.